alt.support.cancer - Frequently Asked Questions

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Cancer glossary

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Cancer glossary

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Information on cancer terms used on newsgroup alt.support.cancer.

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Ablative Iodine (I-131)

Therapeutic doses of radioactive iodine with the aim of destroying all remaining thyroid tissues.

Acute

Means sudden or severe.

Adjuvant-Chemotherapy

Chemotherapy given as an "add-on" to primary cancer treatment, as in surgery or radiotherapy.

Adriamycin

A trade name for doxorubicin.

Age-Adjusted-Mortality-Rate

Age is a very important factor in determining mortality, for example people tend to get different cancers at different ages. To compare the mortality rates of two or more populations, differences in the age distributions of the population are removed by using an age-adjusted rate.

Allogenic-Bone-Marrow-Transplant

Healthy marrow is taken from a matched donor and used to replace the patient's own marrow. The donor may be a relative, if the patient has a twin this may be the best match, otherwise a brother, sister, or another unrelated person may donate marrow.

Allopathy

Although medicine never accepted the label of allopathy, nonmedical practitioners such as chiropractors, homeopaths, and naturopaths regularly misrepresent physicians as "allopaths." This is usually done in order to make differences between their practice guilds appear based upon conflicting philosophies rather than ideology versus science. Opponents of medicine claim that they treat the underlying causes of disease, while MDs treat only the symptoms. Further, they claim that medicine suppresses the symptoms, thus interfering with the body's inherent healing processes. A close examination reveals that this line of reasoning is only clever rhetoric. When they say the are treating the underlying causes, these vitalistic ideologists refer to a metaphysical life force rather than actual causes of disease such as viruses, bacteria, protozoa, genetic defects, radiation, chemical insult, and so forth. In reality, chiropractic manipulative therapy's main value is symptomatic relief from back pain. Homeopathy has always been based upon symptomatic relief. Homeopathic remedies are based upon a process called "proving" which identifies prospective remedies by matching the symptoms they produce in high dosages with the symptoms reported by a patient.

One may conclude from this, that allopath(y) is a derogatory term that should not be used to defend nonmedicine.

Alternative Medicine

Unconventional therapies used in place of traditional medicine. There are varying degrees of potential patient harm that can result from unconventional therapies. The harms fall within three categories:

Economic Harm-Results in monetary loss but presents no health hazard.

Indirect Harm-Results in a delay of appropriate treatment, or in unreasonable expectations that discourage patients and their families from accepting and dealing effectively with their medical conditions.

Direct Harm-Results in adverse patient outcome.

Richard Dawkins, professor of the Public Understanding of Science at Oxford, notes that alternative medicine is defined as that set of practices that cannot be tested, refuse to be tested or consistently fail tests.

Alternative therapies refer to treatments that are sometimes promoted as cancer cures. There is considerably more risk to the patient when traditional medical treatments are abandoned in favor of unproven or untested alternative therapies. Furthermore, when patients mix and match treatments the use of alternative therapies may counteract the benefits of standard medicines, skew lab test results, or even cause direct harm.

The question of valid alternative treatments is unanswerable because it contains an invalid assumption. Alternative is a slogan, not a definable set of methods. Methods should be classified into three groups: (1) those that work, (2) those that don't work, and (3) those we are not sure about. Most described as "alternative" fall into the second group. But the only meaningful way to evaluate methods is to examine them individually.

There is no alternative medicine. There is only scientifically proven, evidence-based medicine supported by solid data or unproven medicine, for which scientific evidence is lacking. Whether a therapeutic practice is 'Eastern' or 'Western,' is unconventional or mainstream, or involves mind-body techniques or molecular genetics is largely irrelevant except for historical purposes and cultural interest. . . . As believers in science and evidence, we must focus on fundamental issues-namely, the patient, the target disease or condition, the proposed or practiced treatment, and the need for convincing data on safety and therapeutic efficacy."

"There cannot be two kinds of medicine -- conventional and alternative. There is only medicine that has been adequately tested and medicine that has not, medicine that works and medicine that may or may not work. Once a treatment has been tested rigorously, it no longer matters whether it was considered alternative at the outset. If it is found to be reasonably safe and effective, it will be accepted. But assertions, speculation, and testimonials do not substitute for evidence."

There are hundreds of alternative medicine practices that include the likes of acupuncture, aromatherapy, homeopathy, iridology, naturopathy, psychic surgery, magnet therapy, chelation therapy, reflexology, chiropractic and therapeutic touch, to name a few. Though quite varied, these entities have certain concepts in common with paranormal, pseudoscience, vitalism, energy fields mysticism, innate healing systems, religious components and illusion. If, at times, the referred to therapies appear to work, they owe much to the placebo effect, tincture of time and a wealth of other explanations that do not mean they are effective.

And, indeed, sometimes people get better when using unproven treatments. But because these therapies have not passed scientific muster, it is impossible to know if improvement is associated with the treatment, represents spontaneous change, or is due to the "placebo" effect. (A placebo is an inactive substance with no known therapeutic value. The "placebo effect" is the phenomenon of people getting better while taking an inactive substance they believe to be therapeutic.) "It's important to remember," says Barrett, "that many conditions get better on their own, or appear to get better if we believe they will."

"It is wrong always, everywhere, and for anyone, to believe anything upon insufficient evidence. " - William Clifford

Anemia

Below normal levels of erythrocytes (red blood cells) causing a decrease in the oxygen-carrying capacity of the blood.

Antibody

A molecule produced by lymphocytes in response to stimulation by an antigen. Antibodies bind to antigens, causing the cells bearing the antigens to clump together. These clumps are then destroyed by other blood cells.

Antigen

Any substance capable of stimulating a specific immune response (i.e., a specific antibody) in the body.

Antigens are proteins that are present on the surface of all cells and bacteria and viruses. If foreign antigens (such as bacteria, viruses, or grains of pollen) are detected then the body's immune system will attack them.

Aplastic-Anemia

Anemia that is resistant to treatment; often accompanied by deficiencies of other blood cells.

Aspirate

To suck fluids out of a cavity, suction, or inhale.

Autologous-Bone-Marrow-Transplant (ABMT)

A process in which a patient's healthy bone marrow is withdrawn and preserved. It is later injected back into the patient to replace bone marrow damaged by high doses of radiation therapy. It can then produce healthy blood cells. This treatment is used to offset the detrimental effects of high-dose radiation used in certain types of cancer.

Autosome

Any non-sex-determining chromosome; in humans there are 22 pairs of autosomes.

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B-Cells

Lymphocytes responsible for humoral (fluid based) immunity and antibody production.

Barium-Enema

A barium enema (or "lower GI series") is a procedure that uses a barium sulfate enema followed by an X-ray to view the colon and rectum. Barium sulfate is a chalky chemical that appears white on X-ray film thus showing the lining of the colon. This helps identify any abnormalities which usually appear darker on the X-rays. Sometimes air can also be pumped into the intestine in order to sharpen the image.

Basal-Cell-Carcinoma

This is where the basal cells become cancerous; basal cells are found in the epidermis (the outermost layer of skin). This is the most common type of skin cancer, which is usually highly curable when detected early.

Benign

Not cancerous - not spreading, usually a more mild disease. Non-malignant.

Best Case Series

Investigators describe patients who they believe have had the best results with a particular treatment.

Bias

Human choices or any other factors beside the treatments being tested that affect a study's results. Clinical trials use many methods to avoid bias, because biased results may not be correct.

Biological-Therapy

Cancer treatment that uses natural substances or substances made in a laboratory to stimulate or restore the ability of the body's immune system to fight disease. Interferon and interleukin-2 therapies are examples. Therapies such as these are often used in conjunction with other treatments. Also called immunotherapy.

Biopsy

This is the removal of a small section of the tumor; the sample will be analyzed by a histopathologist in order to establish a precise diagnosis. Surgical procedure. This may be a needle biopsy, where a very fine needle is used to take a tiny sample of the tumor. Occasionally a surgeon may remove the whole tumor prior to diagnosis a resection biopsy.

Blastoma

A tumor composed of very immature cells.

Bone-Marrow

The spongy material that fills the inner spaces of the bones. It is the place where many blood elements, such as red blood cells, are produced. High doses of radiation can destroy bone marrow during cancer treatment.

Bone-Marrow-Transplant

A procedure in which a section of bone marrow is taken from one person and transplanted into another. It is used to replace bone marrow that has been damaged or diseased. It can be a treatment option in leukemia.

Brachytherapy

A type of radiation therapy is which radioactive materials are placed in direct contact with the tissue being treated.

Breast-Cancer

Breast cancer is the most common type of cancer in women aged between 35 to 54, incidence has increased such that 1 in 9 women develop breast cancer in the USA. The most common type of breast cancer is found in the cells of the breast ducts, other types include those of the lobes, and inflammatory breast cancer. Between 5 and 10% of breast cancers are known to be hereditary, women with the defective BRCA1 gene are more likely to develop breast or ovarian cancer.

Breast Self-Exam (BSE)

A method for women to check their breasts for changes in appearance or feel. This can help detect breast cancer at an earlier stage, should it develop.

Burkitt's Lymphoma

A type of non-Hodgkin's lymphoma that most often occurs in young people between the ages of 12 and 30. The disease usually causes a rapidly growing tumor in the abdomen. A malignant lymphoma that affects primarily the upper and lower jaws, orbit, retroperitoneal tissues situated near the pancreas, kidneys, ovaries, testes, thyroid, adrenal glands, heart, and pleura, that occurs especially in children of central Africa, and that is associated with Epstein-Barr virus

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Cachexia

The rapid loss of weight along with fatigue, weakness, and loss of appetite. This can be a serious problem for patients with advanced cancer.

CAM

Complementary and Alternative Medicine.

Cancer

The malignant uncontrolled growth of cells, that left untreated, would be fatal. Cancers have the capacity to metastasize, or form secondary tumors at other sites. Cancer is not a single disease but a wide range of different diseases of which there are well over a hundred types. Cancers can be classified into two broad types: hematological (malignancies of the blood / bone marrow) or solid tumors. The name of the cancer depends on the type of tissue and/or site it develops from.

Cancer of Unknown Primary (CUP)

Sometimes, patients are diagnosed with metastatic cancer, but the primary cancer site is not known. Even when doctors look at the cancer cells under a microscope, the part of the body the cancer cells came from cannot be determined. When doctors cannot determine the location of the primary cancer site, they call the disease cancer of unknown primary origin (CUP). About 2 to 4 percent of all cancer patients have CUP.

Carcinogenesis

The production of cancer

Carcinoma

A malignant tumor arising from epithelial tissue (cells of the glands and the outer layer of skin that lines blood vessels, hollow organs and the body's orifices).

Cardiotoxicity

Damage to the heart is associated with certain anti cancer drugs, especially Adriamycin. As such the total dose of these drugs may be limited to reduce the risk of cardiotoxicity.

Care

Refers to the acts of support for an individual cancer patient including emotional support, physical help, help with routine activities including housework, help with medical treatment.

Caregivers

Refers to both primary caregivers and persons providing similar service, medical or other professional services to many cancer patients through volunteering or professionally. Examples of non-primary caregivers are doctors, nurses and volunteer drivers.

Case-Control-Study

Is where cases are compared to controls, in order to avoid bias the controls are matched for factors such as age and sex. The aim is to investigate possible associations between certain factors and risk of disease. For example a study investigating smoking and the risk of lung cancer.

Cell-Differentiation

Is where normal cells go through physical changes in order to form the different specialized tissues of the body. Malignant cells may range from well differentiated (closely resembling the tissue of origin) or undifferentiated or anaplastic (bearing little similarity to the tissue of origin). In general, it is the undifferentiated or anaplastic histologies, which are more aggressive.

Central-Line

A thin plastic line into a vein in the chest used for the delivery of chemotherapy.

Cervical-Cancer

Cervical cancer is a common type of malignancy accounting for about 6% of all cancers found in women. It is a disease in which cancerous cells develop in the uterine cervix (this is the connecting passage between the uterus and vagina). The peak incidence of cervical cancer occurs between the ages of 40 to 55. It is rare before the age of 35, however the incidence of cervical cancer in younger women rose dramatically during the two decades after 1960. Regular Pap smear tests may detect abnormal changes in the cervical tissues, before cancer develops. Symptoms of cervical cancer may include vaginal bleeding after intercourse or bleeding between periods. However, in the early stages of the disease there are often no obvious signs or symptoms, so regular smear tests are important.

Chemotherapy

The treatment of diseases such as cancer with drug therapy. Since the 1960's the development and use of drugs has dramatically improved the prognosis for many types of cancer. Chemo- means chemicals, for most types of cancer chemotherapy will consist of a number of different drugs, this is known as combination chemotherapy. Chemotherapy may be given in a variety of ways; Intravenously (IV) -into a vein is the most common, Intramuscularly (IM) -injection into a muscle, Orally -by mouth, Subcutaneously (SC) -injection under the skin, Intralesionally (IL) -directly into a cancerous area, Intrathecally (IT)-into the fluid around the spine, Topically -medication will be applied onto the skin.

Childhood-Cancer

Childhood cancer is rare, about 1 in every 600 children aged under 15 develop cancer, still very little is known about its causes. Compared with adult cancers they tend to have different histologies and occur in different sites of the body. Common adult cancers such as lung, breast, colon, and stomach are extremely rare among children. On the other hand some types of cancer are almost exclusively found in children, especially embryonal tumors which arise from cells associated with the fetus, embryo, and early postnatal period. The overall cure rate for childhood cancer has drastically improved over the last 2 decades in association with clinical trials and the development of new treatments

Chondrosarcoma

Chondrosarcoma is a cancer arising in cartilage cells, it occurs mostly in adults, it is rare in those aged under 20 with 70% of cases occurring between ages 50-75. Rare sub-types include mesenchymal chondrosarcoma, which is more common in those aged under 40; Clear cell chondrosarcoma (around 2% of cases); and Dedifferenting chondrosarcoma (a rare tumor which transforms from low grade to a high grade sarcoma).

Chromosome

Structures in the cell nucleus, which contain the genes responsible for heredity. Normal human cells contain twenty-three pairs of chromosomes. One of each pair is inherited separately from a person's father and mother

Chronic

Long lasting or slowly progressing.

CIM

Complementary and Integrative Medicine

Clinical-Trial

Also called cancer treatment or research study, test new treatments in people with cancer. The goal of this research is to find better ways to treat cancer and help cancer patients. Clinical trials test many types of treatment such as new drugs, new approaches to surgery or radiation therapy, new combinations of treatments, or new methods such as gene therapy.

Colony-Stimulating-Factors

(CFS) encourage production of white blood cells. G-CSF stimulates granulocytes, and GM-CSF stimulates granulocytes and monocytes. Substances produced naturally by the body and recently synthetically, which stimulate the production of certain blood cells. Examples are G-CSF, GM-CSF, various interleukins, stem cell factor (or steel factor), erythropoietin, etc.

Colorectal-Cancer

Is the second most common type of cancer, and accounts for almost 80% of cancers of the digestive tract. The vast majority of colon and rectum cancers are adenocarcinomas; around 10% of these are mucinous (protein contained in mucus). Surgery is the main form of treatment, though modest benefits of adjuvant chemotherapy have been demonstrated. The median age at diagnosis is 70, age adjusted incidence rates are slightly higher in males compared to females. A substantial proportion of cases are in those with a genetic predisposition to colorectal cancer. Diet may also have an influence on the incidence of colorectal cancer, dietary fiber, retinoids, and calcium are thought to be protective, while high intake of animal fats may increases risk. Colorectal cancer may develop from benign polyps (a polyp is a tumor on a stem most commonly found on mucous membranes). Screening of high risk populations (for those over age 50, particularly those with a 1st degree relative diagnosed with colorectal cancer, or familial predisposition to adenomatous polyposis) may be of benefit in detecting colorectal cancer at an early stage.

Colposcopy

Visual examination of the tissues of the cervix and vagina by inserting a magnifying instrument called a colposcope

Complementary and Alternative Medicine

A combination of complementary and alternative therapies. The terms "complementary" and "alternative" are often used interchangeably, when in fact they are two different therapeutic approaches.

"Complementary and alternative medicine" is an imprecise marketing term that is inherently misleading. "Alternative" methods are loosely described as practices outside of mainstream health care. They lack evidence of safety and effectiveness and are generally not covered by insurance plans. "Complementary medicine" is loosely described as a synthesis of standard and alternative methods that uses the best of both. In truth, there are no "alternatives" to objective evidence of effectiveness and safety. As noted by editors of the top two American medical journals.

While some refer to supplemental treatments as "complementary," and others as "alternative," and still others as "complementary and alternative," there actually is a difference. Simply put, a therapy is generally called "complementary" when it is used in addition to conventional treatments; it is referred to as "alternative" when it is intended for use instead of conventional treatments. Together, complementary and alternative therapies include a broad range of healing philosophies and approaches.

Complementary Integrative Medicine

Combines traditional western and complementary approaches and supplements, but does not replace conventional therapy.

Complementary Medicine

Therapies that complement traditional western medicine. They do not replace standard practices.

Complementary methods are not intended to cure disease, but rather to help control symptoms and improve well being. For example, a patient may drink peppermint tea to help with nausea, practice meditation to reduce stress, or undergo acupuncture for chronic pain. Other complementary methods that are sometimes used along with standard treatments include: aromatherapy, art therapy, biofeedback, massage therapy, t'ai chi, and yoga.

Complete Response

Complete disappearance of all evident tumor.

Computed-Tomography (CT-Scan)

Computed tomography (CT or CAT scan) makes a cross-sectional x-ray picture of a "slice" of the body. The machine rotates around the patient taking x-rays from different angles. The images are then processed by a computer.

Control group

In a clinical trial, the group of people that receives standard treatment for their cancer. (See Treatment group.)

Conventional Medicine

The term conventional medicine refers to medicine as practiced by holders of M.D. (medical doctor) or D.O. (doctor of osteopathy) degrees, some of whom may also practice complementary and alternative medicine. Other terms for conventional medicine are allopathy, Western, regular, and mainstream medicine, and biomedicine.

Cross-sectional Studies

Studies that are carried out at just one point in time.

Cutaneous-T-Cell-lymphoma

A rare type of non-Hodgkin's lymphoma that first appears on the skin, then later spreads to the lymph nodes and organs. Also called mycosis fungoides.

Cyst

A fluid filled sac or cavity.

Cytokines

Also known as colony stimulating factors

Cytotoxic

A substance which kills or damage cells.

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DNA

Deoxyribonucleic acid. DNA is the component of the chromosomes that carries the genetic code

Demography

The study of populations, especially with reference to population size, density, fertility, mortality, growth, age distribution, migration, and vital statistics, and the interaction of all these with social and economic conditions

Diverticulosis

A condition in which a person has small sacs or pouches in the walls of a canal or organ, such as the stomach or intestine. These sacs can become inflamed to cause diverticulitis and can be a risk factor for certain types of cancer.

Dose-Intensity

In chemotherapy, the total amount of drug delivered in a one-week period. Can be given all at once or over a period of several days.

Double blind study

In a double blind study, neither the patient nor the doctor knows who is taking the standard treatment or the new treatment being tested.

Doxorubicin

Doxorubicin hydrochloride: An antibiotic used to treat several forms of cancer. Also known as Adriamycin.

Drug-Resistance

Is when tumor cells become resistant to chemotherapy. Some tumor cells will be chemo-sensitive and are killed by anticancer drugs; the cells that remain are likely to be more resistant. Thus by selection, it is the most resistant cells which survive and divide, and may be resistant to a particular drug, a class of drugs, or all drugs

Dysplasia

The abnormal pathological development of cells, indicating possible malignancy

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Echocardiogram

Is where an image of the heart is formed when high frequency sound waves are reflected from the muscles of the heart. An echocardiogram may be done before treatment starts to establish a baseline from which to compare future tests.

Endoprosthesis

An artificial replacement that is fitted inside the body e.g. a metal prosthesis that replaces the thighbone in limb sparing surgery.

Enteral-Feeding

A method of nutrient delivery where fluid is given directly into the gastrointestinal tract.

Enucleation

Removing the entire eyeball - this operation may be used for advanced stage or large ocular tumors. For some smaller malignant tumors laser treatment may be used (in conjunction with chemotherapy) in which the eye can be salvaged.

Epidemiology

The study of the distribution and causes of diseases in a population.

Epidermis

The outermost layer of the skin. Melanocytes, basal cells, and squamous cells are found in the epidermis. Overexposure of the epidermis to ultraviolet rays from the sun can lead to skin cancer.

Ewing's-Sarcoma

Ewing's sarcoma is most common in children and young adults. The most frequent sites are the pelvis, femur, tibia, and fibula, around a fifth of patients have metastases at diagnosis usually in the lungs or other bones. Ewing's tumors are more frequently found in the diaphysis (the shaft of a long bone) part of the bone. Ewing's sarcoma can sometimes be restricted to soft tissue (Extraosseous Ewing's sarcoma). There is a spectrum of pathology ranging from 'classical' Ewing's which are negative for neural markers; to PNET (peripheral neuroectodermal tumors) which are strongly positive.

Extraosseous

Exclusively soft tissue - no bone involvement

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Fanconi-Anemia

Not cancerous. Fanconi-Anemia is a rare disorder found in children that involves the blood and bone marrow. The symptoms include pancytopenia, hypoplasia of the bone marrow, and patchy discoloration of the skin. This is a recessive condition. Affected children usually develop severe aplastic anemia by age 8 to 9 years. Treatment usually consists of bone marrow transplant.

Febrile

Means with fever

Fecal-Occult-Blood-Test

A test for small traces of blood in stool samples which would not be visible with the naked eye (also know as the "stool guaiac" or "hemoccult" test)

Five-Year-Survival

A term commonly used as the statistical basis for successful treatment. A patient with cancer is generally considered cured after five or more years without recurrence of the disease

Flow-Cytometry

A procedure used to evaluate the risk of recurrence of certain cancers by measuring the amount of DNA in cells. An abnormal amount (either too much to too little) may indicate a recurrence. This sophisticated technique, which measures DNA in just minutes, can help predict the recurrence of breast, prostate, and bladder cancers.

Fluorescein-Angiography

The process of taking X-rays of blood vessels that have been injected with a special dye. The dye allows the person viewing the X-ray to see the blood vessels.

Follow-up

When treatment is complete, periodic visits to the physician are needed to monitor the patient and ensure there has been no recurrence of the disease.

Fractions (RT)

The radiotherapy dose is divided into a number of smaller doses (known as fractions) to reduce the risk of side effects. There is normally one fraction per day.

Fraud

"An intentional perversion of truth for the purpose of inducing another in reliance upon it to part with some valuable thing . . . . A false representation of a matter of fact, whether by words or by conduct, by false or misleading allegations, or by concealment of that which should have been disclosed, which deceives or is intended to deceive another so that he shall act upon it."[Black's Legal Dictionary, 4th Edition, 1968]

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Gene

Hereditary unit. Each gene carries the genetic code, or blue print, for a specific protein. Each human cell has about 80,000 genes, but most of these are not active in a given type of cell

Granulocyte

Type of white blood cell; includes the basophil, eosinophil, and neutrophil (or poly), which is the infection-fighting cell.

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Hamartoma

A benign nodule / overgrowth of normal mature cells that are normally located in the affected part of the body, usually with one particular type of cell predominating.

Health Fraud

The deceptive promotion, advertisement, distribution or sale of articles, intended for human or animal use, that are represented as being effective to diagnose, prevent, cure, treat, or mitigate disease (or other conditions), or provide a beneficial effect on health, but which have not been scientifically proven safe and effective for such purposes. Such practices may be deliberate or done without adequate knowledge or understanding of the article.

Hematology

The branch of medicine that specializes in the study and treatment of blood and blood tissues (including bone marrow).

Hemoglobin

The oxygen-carrying pigment of the red blood cells; combines with oxygen from the lungs and carries it to the body's cells.

Hemorrhage

The escape of large quantities of blood from a blood vessel; heavy bleeding

Histopathology

The study of cells relating to the disease. (Histology is the microscopic study of cells and tissues, Pathology is the study of the disease). The histopathologist will determine a precise diagnosis by laboratory tests and microscopic examination of the cells.

Hodgkin's-Disease

A malignancy of the lymph tissue (lymphoma) that occurs most often in males, and the peak incidence is between ages 15 and 35. It is characterized by progressive, painless enlargement of the lymph nodes, spleen, and general lymph tissue.

Hypercalcemia

The most common life-threatening metabolic disorder associated with neoplastic diseases, occurring in an estimated 10%-20% of all persons with cancer. Carcinomas of the breast, lung, head and neck, kidney, and certain hematologic malignancies, particularly multiple myeloma, are most frequently associated with hypercalcemia.

Hyperfractionated-Radiotherapy

Is where more than one radiotherapy fraction is given per day.

Hypophosphataemia

Abnormally low levels of phosphate in the blood

Hypoplasia

Incomplete or under development of a part of the body.

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I-131

Radioactive Iodine. Iodine is readily uptaken by the thyroid gland, therefore I-131 may be used in small doses for monitoring thyroid tissues (thyroid scanning or "I-131 challenge") or in large doses for treating thyroid cancer ("ablative" I-131).

Immune System

The body system, made up of many organs and cells, that defends the body against infection, disease, and foreign substances. The immune system is often stimulated in specific ways to fight cancer cells.

Immunosuppression

The prevention or suppression of the immune system. For example some drugs may have the side effect of dampening the immune system making the patient prone to infections.

Immunotherapy

Treatment of disease by stimulating the body's own immune system. This is a type of therapy currently being researched as a treatment for cancer.

In-Situ

In place; localized and confined to one area. In situ tumors are at an early stage of development, when the cancer cells are still confined to one layer of tissue. In situ cancers tend to have a high cure rate

In-Vitro

In an artificial environment. For example, many cancer research experiments are in vitro (in the test tube), using cell cultures (cells grown in the lab); either from established cell lines or from material collected at biopsy/surgery.

In-Vivo

Means within the living body.

Incidence

The number of occurrences of a given disease within a population. Cancer incidence is the number of new cases of cancer diagnosed in one year. Data on the incidence of cancer are kept by regional and national cancer registries.

Incidence Rate

Calculated by dividing the number of new cases of a particular cancer during a given period of time by the number of people known to be at risk

Informed Consent

The process in which a person learns key facts about a clinical trial or research study and then agrees voluntarily to take part or decides against it. This process includes signing a form that describes the benefits and risks that may occur if the person decides to take part.

Institutional Review Board (IRB)

Groups of scientists, doctors, clergy, and consumers at each health care facility at which a clinical trial takes place. Designed to protect patients who take part in studies, IRBs review and must approve the protocols for all clinical trials funded by the Federal Government. They check to see that the study is well-designed, does not involve undue risks, and includes safeguards for patients.

Interferon

Interferons are proteins produced by the body with the specific purpose of regulating cell functions. Interferons are produced in the laboratory in large quantities, and are sometimes used in the treatment of certain cancers.

Interleukin-2

A hormone-like substance produced by the body (certain blood cells, specifically) that stimulates the growth of blood cells important to the body's immune system.

Intravenous

(IV) means into a vein.

Investigator

A researcher in a treatment study.

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Laparoscopy

A surgical procedure in which a tiny scope is inserted into the abdomen through a small incision. It is used for a variety of procedures, and often to diagnose disease of the fallopian tubes and pelvic cavity.

Laser-Therapy

Treatment using a powerful, focused beam of light that produces intense heat used to burn away cancerous or damaged tissue.

Leukaemia, Leukemia

A progressive, malignant disease of the blood and blood-forming organs, characterized by over-proliferation and development of leukocytes (a type of white blood cell). There are many different forms of leukemia.

Li-Fraumeni Syndrome

A family cancer syndrome.

Lobe

A portion of an organ such as the liver, lung, breast, brain or thyroid.

Lobectomy

Surgical resection of a lobe of an organ such as the liver or thyroid.

Localized

An invasive neoplasm confined entirely to the organ of origin

Longitudinal Studies

Are studies where individuals are followed over time. A fixed population (cohort) may be monitored over a number of years.

Lumpectomy

where only the lump and surrounding tissue is surgically removed. This is a less aggressive form of surgery than, for example, mastectomy for breast cancer - where the whole breast is removed.

Lymph-Nodes

These are small, bean-shaped organs that supply lymphocytes (a type of white blood cell) to the bloodstream. They also filter out bacteria and other foreign substances from the lymph fluid that contains white blood cells. Lymph nodes (also called lymph glands) are located throughout the body.

Lymphatic-System

The tissues and organs that produce and store the white blood cells used to fight infection. This includes the bone marrow, spleen, thymus, and lymph nodes.

Lymphedema

This is the accumulation of lymph in the interstitial spaces, principally in the subcutaneous fat, due to a defect in the lymphatic system.

Lymphocytes

Are a type of white blood cell that fights disease and infection by producing antibodies and other protective substances. There are 2 categories: a) B cells which recognize specific antigens and produce antibodies to combat them, and b) T cells which are produced in the lymph system, and work in conjunction with the immune system.

Lymphoma

A general term for any disease of the lymphatic tissue characterized by abnormal, uncontrolled cell growth. Hodgkin's disease is a type of lymphoma.

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Macrophage

A type of white blood cell that assists in the body's fight against bacteria and infection by engulfing and destroying invading organisms.

Magnetic-Resonance-Imaging (MRI)

A technique used to image internal structures of the body, particularly the soft tissues (muscles, organs, tendons, etc.). An MRI image is often superior to a normal X-ray image.

Malignancy

The tendency of certain diseases to become progressively worse. A malignancy is often resistant to treatment and can result in death.

Malignant

Cancerous, spreading

Mammogram

A screening and diagnostic technique that uses low-dose x-rays to find tumors in the breast.

Mastectomy

surgical removal of the whole breast, in radical mastectomy the chest muscles and under-arm lymph nodes are also removed.

Medulloblastoma

Is a tumor arising in a part of the brain stem called the medulla. It is nearly always found in children or young adults, 80% are found in children under age15. It can spread from the medulla (part of the brain stem) to the spine or to other parts of the body. Prognosis will depend on the child's age, how much of the tumor remains following surgery, and whether the cancer has metastasized.

Melanocytes

Special cells in the skin and the eye that produce melanin or pigment. Clusters of melanocytes often appear on the skin as moles. melanin: The pigment produced by the body that gives skin and irises (the colored portion of the eye) their color. Melanin also helps protect the skin from the sun's damaging rays.

Melanoma

Cancer that begins in the melanocytes and spreads to other skin cells. Melanoma appears on the skin and looks like a new or changing mole.

Merkel cell cancer

Merkel cell cancer (also known as trabecular cancer, or neuroendocrine cancer of the skin) is a rare type of malignancy developing on or just beneath the skin. These tumors can develop at any age, but the peak incidence is between ages 60 - 80. They are more frequent in white people, the most common sites of diseases are the face or scalp and other areas of high sun exposure.

Meta-Analysis

Is where data from a number of studies are lumped together in order to provide evidence for or against a hypothesis.

Metastasis

Where the cancer has spread to other parts of the body beyond the primary site. Metastatic sites (secondaries) may be regional or distant from the original tumor. Also called mets.

Misinformation

Untrue or misleading information.

Monoclonal-Antibody

An antibody produced in the laboratory that can target specific antigens (substances that provoke an immune response). They can be made in large quantities, and are being tested for their use in cancer diagnosis and treatment.

Morbidity

Any departure, subjective or objective, from a state of physiological or psychological well-being. In this sense, sickness, illness, and a morbid condition are synonymous.

Mortality

Looking at the death rates caused by a disease.

Mortality Rate

Calculated by dividing the number of people who have died of a particular cancer during a given period by the total population at risk.

Multiple Myeloma

A cancer of the white blood cells found in the bone marrow.

Myelodysplasia

Abnormal production and maturation of blood cells; often leading to deficiency of red cells, white cells and platelets; sometimes leading to bone marrow failure or leukemia.

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Neoplasm

A new growth of tissue serving no physiological function

Nephrotoxicity

Some anti cancer drugs may have the side effect of damaging the kidneys, for example ifosfamide and cisplatin are known to be nephrotoxic. There are two categories; glomerular and tubular toxicity relating to the two main areas of the nephron. In studies of ifosfamide the degree of nephrotoxicity is thought to be related to the cumulative dose, but there is a good deal of variability between patients.

Neuroblastoma

Neuroblastoma occurs most often in babies, young children. It is a disease in which cancer cells are found in certain nerve cells in the body, it originates in the adrenal medulla or other sites of sympathetic nervous system tissue. The most common site is the abdomen, either in the adrenal glands or around the spinal cord. The majority of patients present with metastatic disease. Age and stage are the main prognostic factors. Patients under one year of age at diagnosis have a more favorable prognosis. Stage 4S are a special group of patients aged under one year whose neuroblastoma may undergo spontaneous regression (tumor disappears without treatment). Also patients aged under one have a higher proportion of low stage patients compared to older patients. There is an excess of males compared to females, there are a higher proportion of males in patients with less favorable sites and stage.

Neutropenia

Below normal levels of leukocytes in the blood. Febrile-neutropenia (neutropenia with fever) is a common toxicity following chemotherapy.

Neutrophil

Type of white blood cell; also called a granulocyte; the body's primary defense against harmful bacteria.

Non-Hodgkin's-Lymphoma

Any kind of cancer of the lymph tissues other than Hodgkin's disease

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Oedema, Edema

Abnormally large amounts of fluid in the intercellular tissue spaces.

Oncologist

A doctor who specializes in treating cancer.

Oncology

A science dealing with the physical, chemical, and biologic properties and features of cancer, including causes and the disease process.

Osteogenic Sarcoma

Osteogenic Sarcoma (osteosarcoma) is a bone forming cancer. It is the most frequent type of bone tumor and is most common between the ages of 15 to 25. Over 90% of tumors are located in the metaphysis (the growing ends of the bone), the most common sites are the long bones of the legs. Most tumors are solitary; around 2% are multifocal (2 or more bones). It is known that osteosarcoma can be radiation induced. Osteosarcomas vary greatly in radiological and pathological features and therefore needs careful diagnosis to differentiate this from other bone tumors. Most are high-grade intramedullary osteosarcomas, about 5% are low-grade lesions, some are secondary osteosarcomas (for example those caused by radiation therapy).

Osteomyelitis

Inflamation of bone - infection

Osteoporosis

Reduction in bone mass, causing it to be prone to fractures

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Paediatric-Oncology, Pediatric-Oncology

The branch of medicine, which specializes in the study and treatment of childhood cancer. Treating children requires different considerations compared with adult oncology, for example potential treatment side effects may be different to those in adults. Because of the differences between childhood and adult cancers most children are treated in specialist paediatric oncology units, in the UK about 80% of children are treated at a UKCCSG centre.

Paget's-Disease

Not a cancer. Paget's disease is the most common bone disorder characterised by irregular thickening and softening of the bones. The disease is more common after the age of 40, and is frequent in those of European descent but rare in Asians. There is an association with this (non malignant) disease and bone cancer, up to 10% of those with Paget's disease will have a 'sarcomatous transformation' of affected bones giving rise to bone sarcoma. This may be osteosarcoma, fibrosarcoma, chondrosarcoma, or other bone sarcomas.

Palliative Treatment

Treatment which relieves the symptoms and pain.

Pancytopenia

Deficiency of all types of blood cells.

Pap-Test

This is a simple microscopic examination of cells, which can detect cancer of the cervix at an early stage.

Parenteral Feeding

A method of delivering nutrition or other substances directly into a vein. Fluids given usually include salt (saline), glucose, amino acids, electrolytes, vitamins, and medications.

Partial Response

A greater than or equal 50% decrease in the cross sectional area (product of the largest diameter and its perpendicular diameter) of measurable tumor without progression in other tumor sites or the appearance of new lesions.

Pathologist

A doctor who specializes in the nature, structure, and identification of disease.

Pathology

The branch of medicine concerned with disease, especially its structure and its functional effects on the body.

Peripheral-Blood

The blood in the bloodstream.

Peripheral-Blood-Stem-Cell-Rescue

(PBSC) A process by which a drug helps the bone marrow release stem cells into the bloodstream, then collected and preserved until they are needed.

Petechiae

Tiny red dots on the skin due to bleeding under the skin caused by low platelet count.

Phagocytosis

Cell eating: the engulfment and destruction of dangerous microorganisms or cells by certain white blood cells, including neutrophils

Phase-I Clinical Trial

Tests new types of treatment and aim to define a safe dose that will be used for further studies. This is usually the first testing of a treatment on humans after extensive laboratory work. Recruitment for Phase I trials are usually from patients for whom no other effective therapy is known.

Phase-II Clinical Trial

Test the anti-cancer effects of the new treatment, and include very detailed toxicity investigations. If there is effective anti-tumor activity, it may be incorporated in a future phase III study.

Phase-III Clinical Trial

Compare one or more treatments of proven efficacy. Often patients will be randomized between an established 'standard' treatment and a new 'experimental' treatment - it is not known which is the better treatment. .

Photocoagulation

A cancer treatment in which a laser is used to destroy blood vessels entering a tumor so that the tumor will be starved of oxygen and nutrients.

Placebo

A tablet, capsule, or injection that looks like the drug or other substance being tested but contains no drug.

Plasma

A colorless fluid which contains water and other components in which red cells, white cells, and platelets are suspended.

Plasma-Cells

White blood cells

Platelets

A blood component that is instrumental in clot formation, which stops bleeding in injured areas and prevents hemmorhage. Blood cell fragments containing clotting factors which prevent bleeding and bruising.

Polyp

A benign growth protruding from a mucous membrane, commonly found in the nose, uterus, and rectum. Certain polyps, particularly those found in the colon, can become cancerous and may require surgical removal.

Practice Criteria

Physicians are responsible for practicing good medicine by complying with professional standards and regulatory mandates. Is the physician using a treatment that is:

·         Effective and safe - having adequate scientific evidence of efficacy and/or safety or greater safety than other established treatment models for the same condition.

·         Effective, but with some real or potential danger - having evidence of efficacy, but also of adverse side effects.

·         Inadequately studied, but safe - having insufficient evidence of clinical efficacy, but reasonable evidence to suggest relative safety.

·         Ineffective and dangerous - proven to be ineffective or unsafe through controlled trials or documented evidence or as measured by a risk/benefit assessment.

Primary Caregivers

Refers to those people, typically family members, who care directly for an individual cancer patient.

Prognosis

Is the expected outcome of a disease. This may be influenced by a variety of factors such as stage, age, site etc. depending on the particular type of cancer. For example, in general a patient with localized disease may have a more favorable prognosis compared to a patient with widespread disease, which may be less favorable.

Progressive Disease

Increase in greater than or equal 25% of any pretreatment area of measurable malignant disease, development of any new area of malignant disease, physiologic evidence of progression, or significant clinical deterioration reasonably presumed to be related to malignant disease.

Promote

To contribute to the growth or prosperity of; to present for public acceptance through advertising and publicity.

Prostate-Gland

A gland in men that surrounds the neck of the bladder and urethra. The prostate contributes to the production of seminal fluid.

Prostate-Specific-Antigen test

(PSA) test. A simple blood test used to detect prostate cancer in men. The test measures a specific antigen normally secreted by the prostate. If cancer is developing, the prostate secretes greater amounts of PSA. This test is recommended for men with an enlarged prostate and an increased risk of prostate cancer.

Prosthesis

An artificial replacement e.g. for an amputated limb.

Protocol

An action plan for a clinical trial. The plan states what will be done in the study and why. It outlines how many people will take part in the study, what types of patients may take part, what tests they will receive and how often, and the treatment plan.

Proven Treatments

Must meet the legal and scientific definition of proof. Testimonials are not considered any part of a proof.

Pruritus

Severe itching. Possibly due to a drug reaction.

Pyrexia

Fever or abnormally high body temperature

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Quack

Anyone who promotes medical schemes or remedies known to be false, or which are unproven, for a profit

Quackery

Promoting health products, services, or practices of questionable safety, effectiveness, or validity for an intended purpose.

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Radiation-Enteritis

Functional disorder of the large and small bowel that occurs during or following a course of radiotherapy to the abdomen, pelvis, or rectum.

Radiatiotherapy

Cancer treatments, which utilize high-energy waves or particles of radiation.

Radiology

The branch of medicine dealing with radioactive substances including the diagnosis and treatment of diseases.

Radiotherapy-Field

The area towards which the radiotherapy was directed.

Randomization

A method used to prevent bias in research. People are assigned by chance to either the treatment or control group.

Recessive

In genetics, if the required allele (a type of gene) is not present in both members of a pair of chromosomes then that allele is not expressed. A mutation is said to be recessive if an individual must inherit two copies of the mutant gene, one from each parent, to show the mutant trait. Individuals with one mutant and one normal gene appear normal. They are called carriers.

Red-Blood-Cell

Red blood cell (erythrocyte): Oxygen-carrying cell in the blood which contains the pigment hemoglobin; produced in the bone marrow.

Reed-Sternberg-Cell

A type of cell that indicates the presence of Hodgkin's disease. The number of these cells increases as the disease progresses.

Refractory

This is where the cancer is resistant to treatment.

Regional

A tumor that has extended beyond the limits of the organ where it started, growing directly into surrounding organs or tissues, but has not spread to distant parts of the body.

Relapse

This is when the disease reoccurs after a period in remission.

Remission

When the signs and symptoms of cancer go away, the disease is said to be "in remission." A remission can be temporary or permanent.

Resection

Surgical removal of an area of tissue or of an entire organ. The surgical specimen may be examined by a pathologist to determine if it is likely to have removed all of the tumor. If there is any tumor left after surgery this may be macroscopic (visible to the eye) or microscopic, in either case radiotherapy may be needed to kill the remaining tumor cells.

Rickets

Disease-disturbance of normal ossification- bending and distortion of bones. Normally caused by vitamin D deficiency or possibly a dysfunction of the kidneys.

Risk Factors

Anything that has been identified as increasing an individual's chance of getting a disease.

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Sarcoma

A cancerous growth of the bone, muscle, or connective tissues, usually appearing first as a painless swelling.

Screening

Tests that sort out apparently well persons who probably have a disease from those who probably do not. If positive, they would be referred to a physician for diagnosis.

Side Effects

Problems that occur when treatment affects healthy cells. Common side effects of standard cancer treatments are fatigue, nausea, vomiting, decreased blood cell counts, hair loss, and mouth sores. New treatments being tested may have these or other unknown side effects.

Sigmoidoscopy

A procedure in which a scope is used to view the sigmoid flexure, a part of the colon that's shaped like the letter S.

Single Blind Study

A method used to prevent bias in treatment studies. In a single blind study, the patient is not told whether he/she is taking the standard treatment or the new treatment being tested. Only the doctors know.

Skin Cancer

Skin cancer is the most common type of cancer and accounts for half of all new cancers in Western populations. It occurs more often in people with light colored skin who have had a high exposure to sunlight. The two most frequent types of skin cancer are Basal Cell Carcinomas and Squamous Cell Carcinoma (often grouped under "non-melanoma skin cancer"). The third most frequent skin cancer is Melanoma, this is a malignancy of the cells which give the skin its color (melanocytes). In addition there are a number of other, less common cancers starting in the skin including Merkel cell tumors, cutaneous lymphomas, and sarcomas (see the pages on sarcoma and lymphoma in this guide).

Squamous-Cell-Carcinoma

A type of skin cancer arising in squamous cells (the flat, scaly cells on the surface of the skin). Cure rates are very high when detected and treated early.

Stable Disease

Change in measurable disease too small to meet the requirements for partial response or progression without the appearance of new lesions.

Stage

The extent of a cancer and whether the disease has spread from the original site to other parts of the body. Numbers with or without letters are used to define cancer stages (e.g., Stage IIb). In general, low stage patients are those with localized tumors that are easily resectable, while high stage patients are those with widespread metastases. The treatment given may largely depend upon which stage the patient is at diagnosis.

Staging

Staging is the process where the disease is categorized as to how far it has spread. The precise staging system used will depend on the type of cancer the patient has.

Standard Treatment

The best treatment currently known for a cancer, based on results of past research.

Stem Cells

A generalized cell whose division results in other specialized cells. Its descendents have the potential to develop into several different types of mature cells. Alt: Original cell from which megakaryocytes (giant cells from which mature blood platelets originate), red blood cells, and white cells develop in the bone marrow.

Surgery

An operation

Surgical-Oncology

Treatment of cancer using surgery, usually to remove cancerous tumors and tissue.

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T-Cell

A small lymphocyte made in the bone marrow that circulates through the bloodstream. T-cells have several functions, and are especially important in the body's immune response.

Those Who’s Lives Are Touched By Cancer

Refers to cancer patients, their personal caregivers, and the medical and charitable organizations that provide care for cancer patients. For brevity, these are referred to as "patients and caregivers"

Thrombocyte

Platelet

Thrombocytopenia

Low platelet count.

Thyroidectomy

Surgical removal of the thyroid gland.

·         Partial Thyroidectomy - removal of part of the thyroid eg. lobectomy or hemithyroidectomy

·         Total Thyroidectomy - removal of all of the (remaining) thyroid gland.

Thyroxine

A hormone produced by the thyroid gland. It contains iodine which is essential for the body's normal growth, and metabolism. Following therapy for thyroid cancer many patients need to take thyroxine supplements in order to maintain normal weight and body functions.

Total-Body-Irradiation

Radiation to the whole body

Toxicity